← REAL HEALTH + PATIENT RIGHTS
Federal patient-rights navigation

HIPAA How-To Directory

Use this directory to locate the right federal process. A HIPAA amendment request, an OCR complaint, an information-blocking complaint and a state licensing complaint are different tools for different problems.

01

Get your records

Ask a covered provider or plan for the designated record set. Most access requests must be acted on within 30 days; one 30-day extension is possible.

Official / Primary Resource
02

Check for errors

Review allergies, medications, diagnoses/problem list, history, test results, dates, demographics and billing information.

Official / Primary Resource
03

Request an amendment

Use HIPAA 45 C.F.R. §164.526 to ask a covered entity to amend PHI you believe is inaccurate or incomplete.

Official / Primary Resource
04

If the amendment is denied

Ask for the written denial. You can submit a statement of disagreement and have it linked to the disputed record.

Official / Primary Resource
05

File a HIPAA complaint

HHS OCR accepts privacy/security complaints, generally within 180 days of when you knew of the alleged violation; good-cause extensions may be possible.

Official / Primary Resource
06

Report information blocking

If access/exchange/use of electronic health information is improperly interfered with, ONC has an information-blocking claim process.

Official / Primary Resource
07

Understand who HIPAA covers

HIPAA generally regulates covered health plans, clearinghouses, certain electronic-transacting providers, and business associates—not every employer, app or website.

Official / Primary Resource
08

Military Health System rights

MHS/TRICARE patients also have HIPAA rights to access and request amendment of incorrect/incomplete PHI.

Official / Primary Resource
09

Privacy practices

Read the provider/plan Notice of Privacy Practices to learn permitted uses/disclosures, complaint contacts and patient rights.

Official / Primary Resource
10

Cord-blood decisions

Compare public donation, private banking, FDA regulation, proven transplant uses, cost/storage terms and experimental claims.

Official / Primary Resource

Which path fits?

ProblemLikely starting path
You want a copy of recordsHIPAA Right of Access / provider records office.
A factual or incomplete medical/billing recordHIPAA amendment request under §164.526.
Provider refuses amendment because it believes the record is accurate/completeWritten denial → statement of disagreement → complaint if you believe HIPAA procedures were violated.
Electronic health information is being improperly blockedONC information-blocking process.
Privacy/security violation by a HIPAA regulated entityHHS Office for Civil Rights complaint.
Medical negligence / professional misconductNot automatically HIPAA. Consider state licensing, malpractice counsel, insurer grievance or other applicable process.
Military Health System recordMTF HIPAA Privacy Officer / DHA Privacy & Civil Liberties; MHS recognizes access and amendment rights.